Please find a list of diabetes-specific assessment tools and other general mental health measures that can be used when working with youth with diabetes. Information is also provided about ages each measure is validated for use with, how to access each measure, and links to the associated validation study. If you know of a measure that should be added to this list, please let us know by reaching out through our Contact Us page.
Adherence / Diabetes Self-Management
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Diabetes Family Adherence Measure (D-FAM) |
Ages 8-18 |
Requires permission |
To access contact: Adam Lewin, PhD |
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Diabetes Management Questionnaire, a brief, self-report meansure (DMQ) |
Ages 8-18 |
Free to use without permission |
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Diabetes Self-Management Questionnaire (DSMQ) |
Ages 9-15 |
DSMQ-R © Dr. Andreas Schmitt, 2015 |
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Diabetes Self-Management Profile - Spanish (DSMP-Parent-SP) |
Ages 10-17 |
No copyright |
To access contact: Jessica Valenzuela, PhD |
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Parental Monitoring of Diabetes Care Questionnaire (PMDC-R) |
Ages 12-18 |
No copyright |
To access contact: Deborah Ellis, PhD |
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Self Care Inventory (SCI) |
Ages 11-18 |
Public Domain |
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Adherence in Diabetes Questionnaire; ADQ-I (Insulin infusion version) or ADQ-C (Conventional Insulin version) |
Ages 2-17 |
No Copyright |
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Diabetes Self-Management Profile (DSMP) |
Ages 8-17 |
No Copyright |
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Pediatric Diabetes Routines Questionnaire |
Ages 12-17 |
No Copyright |
To access contact: Jessica S. Pierce, PhD |
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Readiness for Independent Self-Care Questionnaire Adolescent (RISQ-T) and Parent Versions (RISQ-P) |
Ages 13-17 |
No Copyright |
To access contact: Eveline R. Goethals, PhD |
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Self-Efficacy for Diabetes Self-Management |
Ages 8-18 |
No Copyright |
Anxiety
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
General Anxiety Disorder - 7 (GAD-7) |
Ages 13+ |
Copyright held by Pfizer Inc., however the measure is free use |
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Multidimensional Anxiety Scale for Children - 2 (MASC-2) |
Ages 8-19 |
Requires purchase |
Depression
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Patient Health Questionnaire - Adolescents (PHQ-A) |
Ages 11-17 |
Free to use without permission |
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Patient Health Questionnaire - 8 (PHQ-8) |
Ages 18+ |
Free to use without permission |
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Patient Health Questionnaire - 9 (PHQ-9) |
Ages 12+ |
Free to use without permission |
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Children's Depression Inventory - Second Edition (CDI-2) |
Ages 7 -17 |
Requires purchase |
disordered EATING
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Diabetes Eating Problems Survey -Revised (DEPS-R) |
Ages 13-19 |
Copyright held by the Joslin Diabetes Center |
To access contact: Lori Laffel, MD, MPH |
Diabetes Distress
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Diabetes Distress Scale (DDS) |
Ages 13-19 |
Public domain |
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Diabetes Distress Scale - Parents of Teen (DDS-Parent) |
Ages 11-21 |
Free to use without permission |
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Diabetes Distress Scale - Partner (DDS-Partner) |
Age 18+ |
Free to use without permission |
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Diabetes Distress Scale - Type 1 (DDS-T1) |
Age 18+ |
Free to use without permission |
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Problem Areas in Diabetes Questionnaire - Adult (PAID-A) |
Age 18+ |
Copyright held by Joslin Diabetes Center |
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Problem Areas in Diabetes Questionnaire - Child (PAID-C) |
Ages 8-12 |
Free but requires permission |
To access contact: Jill Weissberg-Benchell, PhD |
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Problem Areas in Diabetes Questionnaire - Parent of Child (P-PAID-C) |
Ages 8-12 |
Free but requires permission |
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Problem Areas in Diabetes Questionnaire - Teen (PAID-T) |
Ages 12-18 |
Free but requires permission |
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Problem Areas in Diabetes Questionnaire - Parent of Teen (P-PAID-T) |
Ages 12-18 |
Free but requires permission |
Family Functioning
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Diabetes Family Impact Scale (DFI-S) |
Ages 5-18 |
Copyright held by the Joslin Diabetes Center |
To access contact: Michelle Katz, PhD |
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Diabetes Family Conflict Scale - Revised (Youth Self-report and parent-report) (DFCS) |
Ages 8-18 |
Copyright held by the Joslin Diabetes Center |
Fear of Hypoglycemia
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Hypoglycemia Confidence Scale (HCS) |
Ages 18+ |
Free to use without permission |
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Hypoglycemia Fear Survey-II (Adult) |
Age 18+ |
No Copyright |
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Hypoglycemia Fear Survey-II (Youth) |
Ages 6-18 |
No Copyright |
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Hypoglycemia Fear Survey-II (Parent) |
Ages 6-18 |
No Copyright |
Injection-Related Distress
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Diabetes Injection Distress - Parent Report Form (DID-PRF) |
Ages 3-10 |
No Copyright |
Other
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Monitoring Individual Needs in Diabetes Youth Questionnaire (MY-Q) |
Ages 12+ |
Free to use without permission, if you sign a user agreement |
To access contact: Maartje De Wit, PhD |
Parenting Stress
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Childhood Illness-related Parenting Stress: The Pediatric Inventory for Parents (PIP) |
Ages 8-19 |
Free to use without permission |
To access contact: Randi Streisand, PhD |
Quality of Life
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Diabetes Quality of Life for Youths (DQOLY) |
Ages 10-18 |
Public domain |
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Pediatric Quality of Life Inventory 3.0 Diabetes Module (PedsQL) |
Self-Report Ages 5-18; Parent-Report Ages 2-18 |
Copyright held by Dr. James W. Varni; Free access depending on use |
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The Smiley Faces Questionnaire |
Ages 4+ |
Copyright held by Wiley |
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Type 1 Diabetes and Life (T1DAL) |
Age 8–17 |
Copyright held by Dr. Marisa Hilliard |
Hilliard et al. (2020) |
Risks
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Psychosocial Risk Screening Measure (PRISM) |
Ages 1-18 |
Copyright held by Dr. David Schwartz, however the measure is free as an open-access article |
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Risk Index for Poor Glycemic Control (RI-PGC) |
Ages 3-18 |
Copyright held by Dr. David Schwartz, however the measure is free as an open-access article |
Self-Esteem
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Diabetes-Specific Self-Esteem (DSSE) |
Ages 10-16 |
Not Specified |
Social Support
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Diabetes Social Support Questionnaire (DSSQ-Friends) |
Ages 11-18 |
Not Specified |
Strengths / Resilience
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
The Diabetes Strengths and Resilience Measures for Children (DSTAR-C) |
Ages 9-13 |
Copyright held by Dr. Marisa Hilliard |
To access contact: Marisa Hilliard, PhD |
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The Diabetes Strengths and Resilience Measures for Teens (DSTAR-T) |
Ages 14-17 |
Copyright held by Dr. Marisa Hilliard |
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The Diabetes Strengths and Resilience Measures for Young Adults (DSTAR-YA) |
Ages 18-25 |
Copyright held by Dr. Marisa Hilliard |
Currently in the validation process |
Transition Readiness
Measure Name |
Ages Validated |
Copyright Information |
Access Link |
Validation Study |
Turkish Transition Readiness Assessment Questionnaire (T-TRAQ) |
Ages 14-21 |
Copyright of the publication belongs to Balkan Medical Journal |
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Readiness Assessment of Emerging Adults With Type 1 Diabetes Diagnosed in Youth (READDY) |
Ages 15-24 |
Copyright held by American Diabetes Association |
To access contact: Sarah Corathers, MD |
Corathers et al. (2019) |
Transition Readiness Assessment Questionnaire (TRAQ) |
Ages 14-21 |
Copyright held by Dr. Daniel Wood |
COMING SOON: Click here to download a PDF with all categories of assessment resources.